Company Information :
Sturge-Weber Foundation
PO Box 418
Mount Freedom, NJ 07970
USA
Ph. 973-895-4445 ext.4
Media Contacts:
Anne Howard
Director of Partner Programs
The Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, NJ 07970
Phone: (973) 895-4445
Fax: (973) 895-4846
Email: ahoward@sturge-weber.com
For Immediate Release
When it was first compiled and edited by John Bodensteiner, M.D. and E.S. Roach, M.D., it was the first medical text in over 40 years to cover Sturge-Weber syndrome (SWS). The second edition contains the latest information and insight as well as descriptions and photos of newer imaging modalities. There is updated information about the clinical findings of SWS. Sturge-Weber syndrome is a rare disorder characterized by a facial port wine birthmark, often accompanied by seizures and glaucoma. Clinicians and patients alike will find comprehensive information in the book to assist in understanding and addressing the concerns of SWS patients. The Sturge-Weber Foundation, headquartered in Mt. Freedom, N.J., provides education, information and friendly support for individuals and families coping with Sturge-Weber syndrome and other port wine birthmark conditions. The book can be obtained through the SWF Web site at Sturge-Weber.org/marketplace (http://www.sturge-weber.org/marketplace). Dr. Bodensteiner is in practice at the Barrow Neurological Institute of St. Joseph Hospital in Phoenix, Ariz. Dr. Roach is at the Childrens Hospital, Department or Neurology, in Columbus, Ohio.
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CONTACT:
The Sturge-Weber Foundation
1240 Sussex Turnpike
Randolph, NJ 07869
PHONE. 973-895-4445
FAX. 973 895-4846
EMAIL: ahoward@sturge-weber.org
http://sturge-weber.org
SOURCE: Sturge-Weber Foundation
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