Company Information :
Sturge-Weber Foundation
PO Box 418
Mount Freedom, NJ 07970
USA
Ph. 973-895-4445 ext.4
Media Contacts:
Anne Howard
Director of Partner Programs
The Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, NJ 07970
Phone: (973) 895-4445
Fax: (973) 895-4846
Email: ahoward@sturge-weber.com
For Immediate Release
Rady Children's joins nine other hospitals around the country where families can receive comprehensive care for Sturge Weber Syndrome (SWS) and other related port wine birthmark (PWB) conditions by knowledgeable specialists. Each hospital has a team experienced in diagnosing and treating children with these conditions in one convenient location, sparing families the often challenging search for physicians in different specialties and at different institutions. Since its founding in 1987, the SWF has provided information, education and friendly support to over 4500 adults and families of children with Sturge-Weber syndrome, a neurological disorder characterized by a facial port wine birthmark and often seizures and glaucoma. In 1992, the SWF expanded the outreach to include Klippel-Trenaunay (KT), a vascular disorder involving a port wine birthmark on the body or a limb. The SWF also has initiated and supported comprehensive clinical and basic research into the diagnosis and treatment of these conditions. The organization continues to collaborate, translate the research, and encourage all expectations to improve patient quality of life. For more information, visit http://www.sturge-weber.org and on Facebook at http://www.facebook.com/pages/The-Sturge-Weber-Foundation/231991960556
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CONTACT:
The Sturge-Weber Foundation
1240 Sussex Turnpike
Randolph, NJ 07869
PHONE. 973-895-4445
SOURCE: Stiurge-Weber Foundation
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